It was a tough day today. I couldn’t lift my head up. I was dozing on and off. I was so weak. My legs were like noodles and hurt. My arms felt lifeless. I was in my bed I should be feeling like this after a full night of sleep. That’s how fatigue feels. No amount of rest will take the exhaustion away.
This experience is so traumatizing to a sick person. You don’t know how long it will last. You feel completely inapt and hopelessness settles once again.
That was my day. I felt really down. My door bell rang. Shortly after my son walked in with these beautiful flowers and meaningful card dropped by my neighbor. She made my day, a day that poked holes in my desire to exist. So thank you my thoughtful, loving, caring neighbor.
PS: I’m surrounded thoughtful people, who cares. Not every chronically ill person as lucky. Lyme community has the highest suicide rates among all chronic illnesses.