Tag: chronic illness

Unzip My Skin

Unzip My Skin

I want to unzip my skin and free my soul. Then, watch the empty pile of meat I leave behind, As I finally breathe for the first time. Light as a feather… That’s not an empty body on the ground, Just a pile of pain and suffering.

The 10 Type of People You Will Deal With When You Have An Invisible Illness

The 10 Type of People You Will Deal With When You Have An Invisible Illness

Maneuvering the minefield of “how are yous,” unwelcome personal health questions and recommendations from strangers, friends and loved ones isn’t always easy. Answering these questions or responding to these comments when you are chronically ill and have an invisible illness can be challenging. You have to quickly assess whether the […]

Marriage, love and celebration when chronically ill

Marriage, love and celebration when chronically ill

Today marks my 13th year anniversary with my husband. I’ve been completely immobile for almost 2 weeks. On and off the past 2 months. My husband has to carry me every time I need to use the bathroom, he has to feed me, he has to dress me, he has […]