Tag: Love
challenges, Emotions, Love, Lyme, Support
Chronic Illness and Support
This man is my pillar. He carries the weight of two people – his and mine, while caring for the sick me. I don’t know how he does it, how he gets through it or why he even perseveres the way he does. Not many realize the true weight “in […]
Marriage, love and celebration when chronically ill
Today marks my 13th year anniversary with my husband. I’ve been completely immobile for almost 2 weeks. On and off the past 2 months. My husband has to carry me every time I need to use the bathroom, he has to feed me, he has to dress me, he has […]
Emotions, Happiness, Love, Lyme Disease
Do you remember the last time you were truly happy? I do.
Do you remember the last time you were truly happy? Are you still happy. If not, do you know what caused the happiness slip away from your hands?
challenges, Happiness, Lyme Disease, Lyme Disease Awareness
Lyme didn’t define me, it helped me evolve into who I meant to become…
As a person facing an extremely trying illness (Lyme Disease) I made sure my illness did not define me; instead I let it evolve me. My life took a huge turn, after i have became bedridden and fully dependent. I’ve started my own blog to share my struggles, to become […]
challenges, Friends, Love, Lyme Disease
It takes two to tango
It doesn’t take two to tango in my marriage. Having Lyme disease and being in chronic pain at every possible organ, tissue, muscle and nerve makes it impossible to have an equally weighed relationship. Many of my fellow Lymeys lose spouses, fiancées and boyfriends/girlfriends over this disease. Such a debilitating […]
Cure, Fear, Friends, Love, Lyme, Lyme Disease, Lyme Disease Awareness, Lyme Symptoms, Lyme Treatment, pain, Side effects of Lyme disease, Support
4th of July – Knowing I’m not alone
Decided to have a 4th of July party at my home. In my event invite I told everybody to bring their food and beverages for obvious reasons. I was hoping to at least not to be alone during the wonderful fireworks, that is clearly visible from my patio that overlooks […]
challenges, Cure, Fear, Herx, Love, Lyme Disease, Lyme Disease Awareness, Lyme Symptoms, Lyme Treatment, pain
When it rains, it pours
I received the second set of test results for Toprak, my 5 year old boy. Unfortunately, the test results show that he also has Bartonella. I was hoping that besides the HHV6, he will not have any other issues. Bartonella is a co-infection of Lyme disease. It is a tick bourne […]
Fear, Friends, Love, Lyme Disease, pain, Support
1000 words I want to say, but I won’t
1000 Words I won’t say I want to talk about my disappointments, but I won’t. I am too embarrassed to say anything. Instead, I will talk about what my goals are. I want to talk about my expectations, but I won’t. I am too shy to say anything. Instead, I […]
challenges, Friends, Love, Lyme, Lyme Disease, pain, Side effects of Lyme disease
Social outing for a friend’s farewell luncheon
I had the opportunity to see a good friend of mine, Gerry, today. I’ve known Gerry for almost 5 years. He is a trend setter, fun, down to earth person. He has a wonderful wife, who I admire due to her determination in fighting against cancer and adorable children, who […]
Cure, Fear, Love, Lyme, Lyme Disease, Lyme Symptoms, Lyme Treatment, News
Somewhat good news from the doctor
The Visit to The Doctor Amazingly enough my little brave soul was really good during this process. Even when he got blood drawn for the first time, he did very good. Our doctor is very child friendly. The experience was pleasant and Toprak enjoyed the 2 hours we spent at the doctor’s office. Our […]