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Pain

Pain

Funny fact pain is the one thing that is capable of strengthening your belief in the higher power. You feel helpless, cornered and not in control of what is happening to your body. The pain gets intensified by the level of helplessness you feel and when you reach that point […]

6 month milestone with more tears in public

6 month milestone with more tears in public

Exactly 6 months since I have started my treatment. So much has changed. Things that were at first scary to me became a constant in my life. I am in a wheelchair because I am too weak, too sore and my joints are too swollen for me to walk. On […]

Daily life of a Lymey household

Daily life of a Lymey household

Problems of a Lymey doesn’t end with simple pain. The bigger side of the issue is the emotional pain we go through as a family. Staying strong throughout the process at times feel impossible. The list is endless, however I want to list a few things we go through everyday. […]

Are we missing out?

Are we missing out?

All the things we can’t do anymore I think I can speak for all my Lymeys, when I say all the things we used to do we cannot do anymore. Our lives changed dramatically ever since we got sick. We all  feel we are missing out on all the things […]

Like a little kid holding onto the edge of the pool, instead of swimming

Like a little kid holding onto the edge of the pool, instead of swimming

The taste of Independence Do you remember right around the time you learned how to swim? The moment you broke free of your parents, floaties or having to hold onto the edge of the pool. It was such a big deal then, because it felt wonderful to gain your independence. Finally […]

Alternative healing methods – Bioenergy Healing

Alternative healing methods – Bioenergy Healing

What Bioenergy Healing? Energy healing is based on the fact that humans are very energetic organisms. We create heat, give off light, generate electricity and even have a measurable magnetic field. According to the principles of quantum physics, we are actually energy beings that occupy a physical space. Many energy […]

Getting ready for my oral surgery

Getting ready for my oral surgery

Tomorrow is the day. I will be getting 3 implants tomorrow. I’ve waited a long time for this. This a fairly simple, little bit painful surgery. As usual being a lymey, it doesn’t come to us that easy. See Lyme likes to attack my body wherever it is the weakest. […]

When it rains, it pours

When it rains, it pours

I received the second set of test results for Toprak, my 5 year old boy. Unfortunately, the test results show that he also has Bartonella. I was hoping that besides the HHV6, he will not have any other issues. Bartonella is a co-infection of Lyme disease. It is a tick bourne […]

1000 words I want to say, but I won’t

1000 words I want to say, but I won’t

1000 Words I won’t say I want to talk about my disappointments, but I won’t. I am too embarrassed to say anything. Instead, I will talk about what my goals are. I want to talk about my expectations, but I won’t. I am too shy to say anything. Instead, I […]