Hello my name is Özlem and my 3 children and I have Lyme disease. I was diagnosed early 2013. At this point I have been suffering from so many seemingly unrelated problems, so getting diagnosed was a relief in a way. It was validation that I was not crazy. What I was feeling was real. Lyme disease is a multi-systemic multi-infectious disease, also known as Multiple Infectious Disease Syndrome. It took 9 years and a doctor who cares to listen to my history to get a proper diagnoses.
I was in a small office in Washington, D.C for something unrelated (or so I thought) and she was taking my history. She said I think you have Lyme disease. I had no idea what that meant. When she proceed to explain what it is and how it can be contracted via a tick bite (among many other ways), I found myself back in my Tennessee trip. Something bit me. I asked my husband (boyfriend at the time) to pull it off. We couldn’t figure out what it was. The following few days I felt tired, nauseous and achy (flu-like symptoms). We thought I was pregnant and took a test. Our excitement was short-lived with a negative pregnancy test. We shrugged off my symptoms thinking it was due to travel. When I came back to the room she was talking about our next steps.
She was very well experienced. She made sure to pass as much information as she can to me, while trying not to cause a panic attack. I still remember her words, let’s just run some tests. Looking back now it was no different from how an oncologist would deliver news to her patients. Despite her warning against reading on this illness, I kept reading, and reading, and reading. With every bit of information I realized I was about to go through hell.
I had this rush of emotions and felt like puking words. Once the fear and the panic settled, I accepted (as much as I could) whether by choice or not a journey had begun to healing. This is how ExtraLymey was born. My main goal with this blog is to share my journey, to raise awareness among unsuspecting people, and to encourage others who are still in the dark to keep pressing for answers.
Merhaba Özlem hanım çok yardımınıza ihtiyacım var
Özlem Hanım merhaba
Annemin vücudunda iç içe geçmiş kırmızı halkalar oluştu. Bu halkaların dış kısmı hafif kabarık ve belirgin iç taraftaki halkalar da zamanla büyüyor ve bazılarının rengi soluyor halkalar vücuda yayılıyor. Bu halkalar ağrısız ve kaşıntınız. Yalnız annemin de unutkanlık ve eklem ağrısı bacak eklemlerinin arkasında sıvı birikmesi oluyor Türkiye’de yaşıyoruz 4 dermatoloğa gittik yaptıkları testlerde birşey çıkmadı bişey öğrenirseniz bize de haberin verin dediler gönderdiler bizi. Bu hastalığı tesadüfen okudum. İyi ki bloğunuzu da gördüm. Türkiye’de hangi bölüme başvurup hangi testi yaptırmalıyız nolur bilgilerinizi paylaşın
Özlem hanım merhaba,
öncelikle geçmiş olsun. benim kızımdada lyme hastalığı olma ihtimali var bu konuda eşim sizle konuşmak istiyor. eğer mail adresinizi verebilirseniz fikrinizi almak istediğimiz şeyler var. teşekkürler
I would like to correspond relating to my bloodwork results earliest illness in emergency room. Maybe Lyme? Roy
I had Lyme disease with Bell’s palsy in the summer of 6th grade. I caught it in a Late stage, so it affected my brain. I did get most of my nerves working on the right side of my face. I still have fatigue and joint and muscle pain. I hope you can recover as I did.
Merhaba. Benim. Eşim. Als. Fakat. Lyme. Olan. Sıkıntılari. Birebir. Yaşıyor. Eliza. Ve. Westorblot. Testlerini. Yaptırdım. Negatif. Çıktı. Zannedersem. Kronikleşti. Ve. Üç. Yıldır. Böyle. Felç. Degil. Ama. Felçli. Gibi. Yürüyemiyor. Als. Olsaydı. Kasları. Erİrdi. Şunu. Demek. İstiyorum. Ahmet. Akif. Özbeke. Ulaşamıyorum. Benim. Bu. Doktara. Acil. Ulaşmam. Gerekiyor. Lütfen. Bana. Yardımcı. Olurmusunuz. Dr. Telefonu. Olması. Lazım. Ki. Herşeyi. Anlatayım. Allah. Rızası. İçin .
Merhaba benim oglum A-Tipik Otistik Lyme veya benzeri bir sorunu olduğuna inanıyorum benim Dr.Ahmet Akif ÖZBEK bey e bir sorum olacak ona ulaşmanın bir yolu varmıdır
şimdiden teşekkürler.
Merhabalar! Cocugunuzun hasta olmasindan dolayi cok uzgunum. Lyme hastaligi otizime sebep olabiliyor. Bazen bu yarattigi hastaliklar kalici olabiliyor ama bazen yeterli (zor ve agresif) tedavi sonucunda bu sorunlar ortadan kalkabiliyor. Ahmet beye email attim sizin icin. Eger bana cevap gelirse sizi konusturacagim insallah. Sitemi okudugunuz icin tesekkur ederim.
It breaks my heart to hear such stories, but the good news is that you have a beautiful family, and I know they will help you get through this!…along with some Lyme cartoons and new friends!! Be well.
Thank you Dave. My family is wonderful and very supportive. It is wonderful to connect with new Lymeys. I don’t feel alone and yes the Lyme cartoons are great. Have an energetic and pain free day!