If you want to raise awareness, there are a few ways.
You can always take a bite out of Lyme disease and challenge others.
Donate money to many Lyme foundations. Trust me every dollar helps.
Reach out to your local tv channels and share your personal story. The more tv coverage you get the more online presence you gain.
Contact your local politicians and share your story and struggle. Having a ready to go flyer both pdf format and printed version can be helpful. Ask them to officially declare May as Lyme Disease Awareness month and they will issue a declaration.
Use your own network. Post facts along with short personal story and ask friends and family to share your post.
Twitter is a big gun. Prepare a Lyme disease graphic with facts and tweet to celebrities asking them to retweet. Reaching out to celebrities who have suffered an illnesses or who do a lot of philanthropic work will increase your odds of getting their attention.
Contact schools and see if you can do a presentation on Lyme disease or arrange for a Lyme disease challenge event.
You can also setup fundraisers. Many restaurants already have a system in place for fundraisers, since it is good publicity for them.
Good luck.