Home
The feeling of being a burden and caregiver burnout
This is a scene that hit home hard. I cried watching this scene. Tears were flowing off my face nonstop, then I showed it to my husband in hopes he will see that he is burnt out and that he needs to take care of himself. He often puts his […]
The 10 Type of People You Will Deal With When You Have An Invisible Illness
Maneuvering the minefield of “how are yous,” unwelcome personal health questions and recommendations from strangers, friends and loved ones isn’t always easy. Answering these questions or responding to these comments when you are chronically ill and have an invisible illness can be challenging. You have to quickly assess whether the […]
Invisible Depression
Depression doesn’t look what you think it would from the outside. Think of all your bubbly friends, the “fun” friends, they could be suffering from depression. Most of the symptoms are invisible to those surrounding us. Depression is like a glass of water filled to the top. On sunny days […]
New study on COVID-19 patients
Just as I said it is too early to have any studies on CoronaVirus a new study got published. Please note it has not been peer reviewed yet, so it is not 100% official as of yet. As a personal note I am not a big fan of ELISA (Enzyme-linked […]
The Chronic Pain Nightmare You Can Relate To
People just don’t understand pain. Not only they can’t fully comprehend how bad it is for a person who continuously suffers from it, but they dismiss it. Even with the people who work around chronic pain patients this is the case. I cannot emphasize enough how harmful this behavior is. […]
Invisible Illness, Lyme Disease, Lyme Disease Awareness, Lyme Treatment, Misdiagnosis, Research, Suicide
The Great Imitator and The Consequences of Misdiagnosis
Lyme disease is often referred to as the Great Imitator. Depending on which system the organism invades the visible symptoms can be different from patient to patient. The individual could receive various diagnoses without consideration of an underlying cause for the appropriate treatment options. 72% of participants reported being diagnosed […]
Chronic Illnesses and Halloween – Switch Witch to the rescue
Many people do not realize how stressful a fun holiday like Halloween could get for families who deal with chronic illnesses whether it is Lyme disease, allergies or autoimmune diseases. Children with these health issues often revert to what’s the point of trick or treating, therefore what’s the point of […]
Emotions, Happiness, Invisible Illness, Lyme Disease
From independence…to disability…to new perspective.
I have Lyme disease. I’m not here to raise awareness on how debilitating Lyme disease is, how little funding there is available for research or how doctors lack the necessary training to understand the complexity of what this illness is. I am also not here to share my heartbreaking journey […]
challenges, Emotions, Love, Lyme, Support
Chronic Illness and Support
This man is my pillar. He carries the weight of two people – his and mine, while caring for the sick me. I don’t know how he does it, how he gets through it or why he even perseveres the way he does. Not many realize the true weight “in […]
Emotions, Invisible Illness, Lyme Disease, Lyme Disease Awareness, pain
Unzip My Skin
I want to unzip my skin and free my soul. Then, watch the empty pile of meat I leave behind, As I finally breathe for the first time. Light as a feather… That’s not an empty body on the ground, Just a pile of pain and suffering.
Tremors and Lyme disease
Tremor: Involuntary shaking or movement, ranging from slight to severe, and commonly affecting hands, legs, face, head, or vocal cords. Lyme disease is a multi-system multi-symptom infection caused by Borrelia burgdorferi (Bb). Many patients receives multiple misdiagnosis before they get properly diagnosed, by then Lyme is already at a chronic […]
Lyme and surgery
When you have Lyme disease and have a surgery – even an unrelated or a minor one, your body goes haywire. Lyme is an opportunistic infection, it attacks you where you are weak. The surgery is trauma to the body. Lyme will settle where the trauma is and slow down […]