Tag: Support
The feeling of being a burden and caregiver burnout
This is a scene that hit home hard. I cried watching this scene. Tears were flowing off my face nonstop, then I showed it to my husband in hopes he will see that he is burnt out and that he needs to take care of himself. He often puts his […]
challenges, Emotions, Love, Lyme, Support
Chronic Illness and Support
This man is my pillar. He carries the weight of two people – his and mine, while caring for the sick me. I don’t know how he does it, how he gets through it or why he even perseveres the way he does. Not many realize the true weight “in […]
Marriage, love and celebration when chronically ill
Today marks my 13th year anniversary with my husband. I’ve been completely immobile for almost 2 weeks. On and off the past 2 months. My husband has to carry me every time I need to use the bathroom, he has to feed me, he has to dress me, he has […]
challenges, Cure, Lyme, Lyme Disease, Lyme Disease Awareness, Lyme Treatment, road trip, Support
Breadcrumbs – Germany Adventure
Hi Everybody from St. Georg in Bad Aibling, Germany! Background I’ve started this adventure a while back. A group of friends have mentioned that in Germany they treat Lyme Disease using Hyperthermia (I will explain what this is later on). It was not until a friend gave me the courage […]
Blood Panels, challenges, Cure, Detox, Fear, Friends, Lab Work, Lyme Disease, Lyme Disease Awareness, Lyme Symptoms, Lyme Treatment, pain, Support
The 8 Stages of Lyme Disease Every Lymey Goes Through
1- Dark Ages: Confusion and Doubt Phase You are confused you know you have multiple problems and you are going from doctor to doctor. Yet you come back home with generic diagnosis. Fibromyalgia, Rheumatoid Arthritis, Migraine and with prescriptions that is only trying to address your symptoms not the underlying issue. After […]
challenges, Friends, Love, Lyme Disease
It takes two to tango
It doesn’t take two to tango in my marriage. Having Lyme disease and being in chronic pain at every possible organ, tissue, muscle and nerve makes it impossible to have an equally weighed relationship. Many of my fellow Lymeys lose spouses, fiancées and boyfriends/girlfriends over this disease. Such a debilitating […]
Fear, Friends, Lyme, Lyme Disease, pain, Support
Avoiding words…
I stopped writing because I became afraid to face my emotions. When I write I let out my true feelings and these days I am not ready to face them. I feel very conflicted. Too much is going on. Then again which lymey doesn’t have too much going on in […]
challenges, Cure, Friends, Love, Lyme Disease, Lyme Disease Awareness, Side effects of Lyme disease, Support
The tears I won’t shed or admit that I do
I do not have a story to tell where my family or my friends turned their back on me. I must be one lucky gal that I am surrounded by people, who loves and adores me and who tries so hard to help my family. “You are a strong person!” […]
Fear, Friends, Love, Lyme Disease, Lyme Treatment, pain, road trip, Side effects of Lyme disease, Support
They say there is a reason for everything
Going back home I moved to Northern Virginia July of 2012. I was looking forward to living in a place that will somewhat give me the city life that I miss so much. NOVA has better schools, more public transportation, more restaurants (not just tons of franchise ones), more job […]
Friends, Love, Lyme, Lyme Disease, Support
Revolving around the sun for the 32nd time
Birthday Preparation Quote from my 7 year old: I want to throw a birthday party for mommy and I want it to be perfect. She always makes sure our birthday parties are perfect, so I want hers to be perfect. This is how my sister, who is visiting from Turkey, […]