Tag: support system
The feeling of being a burden and caregiver burnout
This is a scene that hit home hard. I cried watching this scene. Tears were flowing off my face nonstop, then I showed it to my husband in hopes he will see that he is burnt out and that he needs to take care of himself. He often puts his […]
challenges, Cure, Lyme, Lyme Disease, Lyme Disease Awareness, Lyme Treatment, road trip, Support
Breadcrumbs – Germany Adventure
Hi Everybody from St. Georg in Bad Aibling, Germany! Background I’ve started this adventure a while back. A group of friends have mentioned that in Germany they treat Lyme Disease using Hyperthermia (I will explain what this is later on). It was not until a friend gave me the courage […]
challenges, Friends, Love, Lyme Disease
It takes two to tango
It doesn’t take two to tango in my marriage. Having Lyme disease and being in chronic pain at every possible organ, tissue, muscle and nerve makes it impossible to have an equally weighed relationship. Many of my fellow Lymeys lose spouses, fiancées and boyfriends/girlfriends over this disease. Such a debilitating […]
Fear, Friends, Lyme, Lyme Disease, pain, Support
Avoiding words…
I stopped writing because I became afraid to face my emotions. When I write I let out my true feelings and these days I am not ready to face them. I feel very conflicted. Too much is going on. Then again which lymey doesn’t have too much going on in […]
challenges, Cure, Friends, Love, Lyme Disease, Lyme Disease Awareness, Side effects of Lyme disease, Support
The tears I won’t shed or admit that I do
I do not have a story to tell where my family or my friends turned their back on me. I must be one lucky gal that I am surrounded by people, who loves and adores me and who tries so hard to help my family. “You are a strong person!” […]
Cure, Fear, Friends, Love, Lyme, Lyme Disease, Lyme Disease Awareness, Lyme Symptoms, Lyme Treatment, pain, Side effects of Lyme disease, Support
4th of July – Knowing I’m not alone
Decided to have a 4th of July party at my home. In my event invite I told everybody to bring their food and beverages for obvious reasons. I was hoping to at least not to be alone during the wonderful fireworks, that is clearly visible from my patio that overlooks […]
Cure, Friends, Love, Lyme Disease, Lyme Disease Awareness, Lyme Symptoms, pain, Side effects of Lyme disease, Support
I’m working above my capacity and still falling apart
Some might think, what I am going through is just like Fibromyalgia – wide spread muscle pain. I can tell from my interactions with many, they are still not grasping it. I wish I could explain myself a little better. This is not something, I will walk it off. So […]
Fear, Friends, Love, Lyme Disease, Lyme Treatment, pain, road trip, Side effects of Lyme disease, Support
They say there is a reason for everything
Going back home I moved to Northern Virginia July of 2012. I was looking forward to living in a place that will somewhat give me the city life that I miss so much. NOVA has better schools, more public transportation, more restaurants (not just tons of franchise ones), more job […]
Friends, Love, Lyme, Lyme Disease, Support
Revolving around the sun for the 32nd time
Birthday Preparation Quote from my 7 year old: I want to throw a birthday party for mommy and I want it to be perfect. She always makes sure our birthday parties are perfect, so I want hers to be perfect. This is how my sister, who is visiting from Turkey, […]
Cure, Fear, Friends, Herx, Lyme, Lyme Symptoms, Lyme Treatment, Support
If the flowers bloom every spring
My life in seasons If my life was described in seasons, I can say I feel stuck in the middle of the winter right now. There is a snow storm and my only shelter is a tent. I am cold, wet, uncomfortable and distressed. I don’t know how long this […]