Tag: Lyme disease
The feeling of being a burden and caregiver burnout
This is a scene that hit home hard. I cried watching this scene. Tears were flowing off my face nonstop, then I showed it to my husband in hopes he will see that he is burnt out and that he needs to take care of himself. He often puts his […]
Invisible Illness, Lyme Disease, Lyme Disease Awareness, Lyme Treatment, Misdiagnosis, Research, Suicide
The Great Imitator and The Consequences of Misdiagnosis
Lyme disease is often referred to as the Great Imitator. Depending on which system the organism invades the visible symptoms can be different from patient to patient. The individual could receive various diagnoses without consideration of an underlying cause for the appropriate treatment options. 72% of participants reported being diagnosed […]
Chronic Illnesses and Halloween – Switch Witch to the rescue
Many people do not realize how stressful a fun holiday like Halloween could get for families who deal with chronic illnesses whether it is Lyme disease, allergies or autoimmune diseases. Children with these health issues often revert to what’s the point of trick or treating, therefore what’s the point of […]
Emotions, Happiness, Invisible Illness, Lyme Disease
From independence…to disability…to new perspective.
I have Lyme disease. I’m not here to raise awareness on how debilitating Lyme disease is, how little funding there is available for research or how doctors lack the necessary training to understand the complexity of what this illness is. I am also not here to share my heartbreaking journey […]
Emotions, Invisible Illness, Lyme Disease, Lyme Disease Awareness, pain
Unzip My Skin
I want to unzip my skin and free my soul. Then, watch the empty pile of meat I leave behind, As I finally breathe for the first time. Light as a feather… That’s not an empty body on the ground, Just a pile of pain and suffering.
Tremors and Lyme disease
Tremor: Involuntary shaking or movement, ranging from slight to severe, and commonly affecting hands, legs, face, head, or vocal cords. Lyme disease is a multi-system multi-symptom infection caused by Borrelia burgdorferi (Bb). Many patients receives multiple misdiagnosis before they get properly diagnosed, by then Lyme is already at a chronic […]
Lyme and surgery
When you have Lyme disease and have a surgery – even an unrelated or a minor one, your body goes haywire. Lyme is an opportunistic infection, it attacks you where you are weak. The surgery is trauma to the body. Lyme will settle where the trauma is and slow down […]
How can you help?
If you want to raise awareness, there are a few ways. 🔶 You can always take a bite out of Lyme disease and challenge others. 🔶 Donate money to many Lyme foundations. Trust me every dollar helps. 🔶 Reach out to your local tv channels and share your personal story. […]
Hair
Hair. Hair has always been the focal point of my life. Illness made it even more important. People say beauty is in the eye of the beholder. See for the chronically ill, that’s even more true. What we see in the mirror matches what we feel in the inside. My […]
Monster inside of me…
There is a monster inside of me. It has taken over every single cell in my body. It has control over how much pain I endure, how mobile I’m, whether I get to be happy or not. Lyme disease is like a psychopath, who is super intelligent. Once it makes […]